Resources to support children, young people and adults with Down Syndrome

The following are links to resources recommended by people within the Down Syndrome community

General information, advice, and support

  • Downside up: A website with information covering a wide range of topics related to Down Syndrome from sleep strategies to changing public perceptions 
  • Positive about Down Syndrome: Whether you are a new or expectant parent, a professional interested to know about Down syndrome or a member of the public – everyone is welcome!
  • Stepping stones: A collection of stories detailing the challenges, opportunities, tears and joy of raising a child with Down Syndrome. 
  • The Politics of Down Syndrome, Book - "Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else?"
  • World Down Syndrome congress - "We are committed to organising the World Down Syndrome Congress in different locations around the world every 2 years. The WDSC is an unmatched opportunity for people with Down syndrome, families, advocates, professionals and researchers to meet, share knowledge, insight and experience with others from different countries and environments around the world. Those who attend once rarely miss it again!"


  • Ups and downs: Provide a vast selection of free downloadable information and other resources: New parents, EYFS, Primary, secondary and transition to adulthood
  • Picturepath: A digital visual timeline for children with additional needs. Picturepath's visual timeline can be interactively edited and shared between homes and schools 

Speech, language, communication and literacy skills

  • Cartersyard phonics: Carter’s Yard Phonics Flashcards are a set of 64, interactive ‘talking’ flashcards that are used in classrooms throughout the UK. The fun, engaging, multi-sensory cards are the perfect phonics accessory for home and school. Discount code to use at checkout: 2VC3HY9H

Teaching number skills and concepts:

  • This paper discusses the use of Numicon number teaching materials with children with Down syndrome. The theory underlying the design of the materials is discussed, the teaching approach and methodology are described and evidence supporting effectiveness is outlined.
  • Numicon – Free information, support and activities: 
  • DanceSyndrome An inclusive arts charity providing a range of opportunities for individuals and organisations to work with them through inspiring workshops, leadership training and performances. Regular session take place across the North West of England but they also perform at events across the UK. Twitter: @DanceSyndrome

Training and consultancy services 

  • LETS Go! provides specialist consultancy services for children with Down syndrome.  We offer Down syndrome specific training, information, support and services for families, education providers, professionals and organisations.

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