The following are links to resources recommended by people within the Down Syndrome community:

General information, advice, and support

  • DanceSyndrome An inclusive arts charity providing a range of opportunities for individuals and organisations to work with them through inspiring workshops, leadership training and performances. Regular session take place across the North West of England but they also perform at events across the UK. Twitter: @DanceSyndrome
      • Downside up: A website with information covering a wide range of topics related to Down Syndrome from sleep strategies to changing public perceptions 
      • Making Chromosomes count - a new magazine for the Down Syndrome community. You can visit the website to subscribe and receive your copy of Down Syndrome Community News and please get in touch with them if you would like to feature in future newsletters. 
      • Positive about Down Syndrome: Whether you are a new or expectant parent, a professional interested to know about Down syndrome or a member of the public – everyone is welcome!
      • Stepping stones: A collection of stories detailing the challenges, opportunities, tears and joy of raising a child with Down Syndrome
      • The Politics of Down Syndrome, Book - "Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else?"
      • World Down Syndrome congress - "We are committed to organising the World Down Syndrome Congress in different locations around the world every 2 years. The WDSC is an unmatched opportunity for people with Down syndrome, families, advocates, professionals and researchers to meet, share knowledge, insight and experience with others from different countries and environments around the world. Those who attend once rarely miss it again!


        • Going To School a book created by the Cornwall Down Syndrome Support Group. This is an inclusive book for preschool/reception year children that features pictures of the school day and includes images of children with Down Syndrome going about their school day alongside their typical peers. Read the ChatterPack review of the book here This 27 page Makaton download accompanies the book and includes all the signs and symbols to support communication around the school day plus visual timetable, etc
          • Picturepath: A digital visual timeline for children with additional needs. Picturepath's visual timeline can be interactively edited and shared between homes and schools
          • Ups and downs: Provide a vast selection of free downloadable information and other resources: New parents, EYFS, Primary, secondary and transition to adulthood

          Speech, language, communication and literacy skills

          • Cartersyard phonics: Carter’s Yard Phonics Flashcards are a set of 64, interactive ‘talking’ flashcards that are used in classrooms throughout the UK. The fun, engaging, multi-sensory cards are the perfect phonics accessory for home and school. Discount code to use at checkout: 2VC3HY9H

          Teaching number skills and concepts:

          • Numicon – Free information, support, and activities: 
            • This paper discusses the use of Numicon number teaching materials with children with Down syndrome. The theory underlying the design of the materials is discussed, the teaching approach and methodology are described and evidence supporting effectiveness is outlined

          Training and consultancy services 

          • LETS Go! provides specialist consultancy services for children with Down syndrome.  We offer Down syndrome specific training, information, support and services for families, education providers, professionals, and organisations.
              Written by ChatterPack

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